Ozone was good, but the doctor was not.

While in Pennsylvania I started hydrocortisone, had a small dose of DIV ozone, and did an ozone sauna. I had intended to do more ozone but the hydrocortisone made me so sick I couldn’t do any more ozone. I had been warned that this was not a good choice but I tried to trust the doctor. By the 5th day on it, I was shaking, dizzy, muscle aches, the usual low adrenal issues I worked so hard to get above. When I asked the doctor why this was happening he said he had no idea. Minor detail this was after I had to sit and wait for him for over an hour when I already had a DIV appointment.

A short version is I’m extremely disappointed in the care I received, especially for the price. I paid hundreds of dollars to get more sick. I will be having a phone consult next week to address the issues with him. I would really like to continue ozone, especially since I paid all his costs to get in his care but I do not want his medical advice anymore. We will see how he handles it.

By Monday, I had to call The Country Store (my favorite amazing herbalists). Charlie gave me 2 great recommendations and I went from almost having a public meltdown over nothing to fine within almost 15 minutes. It seems crystal clear to me that I need to move my care completely to The Country Store. My plan at this point is to finish my last few rounds of Bartonella antibioitics with Jemsek, follow The Country Store’s recommendations, and get some more ozones in if possible. While I think Jemsek’s antibioitic protocol has been essential to my improvement, I think the herbal method of restablizing the body while removing the toxins has been what is giving me the ability to function back. What is most important is that I can count on them. I am used to calling a doctor and they tell me they don’t know what to do to help or making me wait for days, Liz always is there with a suggestion. Every call I’ve ever made to her has resulted in a significant improvement in symptoms if not within hours, within the days it takes her to get more herbs to me. Being able to rely on someone for great care when things are bad is something I cant tell you how important it has been to me.

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Yesterday for the first time in years, I drove myself, alone, down to the drug store and back. While this isn’t a big deal to many, this is huge for me. I didn’t feel good, my anxiety from not driving in years was kicking, but I was able to get through it. This is one huge step to getting my independence back. To be able to do minor things like get my own food, pick up my prescriptions, and maybe see my friends again is something I have been dying to get back. I am terrified and can’t wait for my next drive.

Yesterday was also a magical day that many LW projects had major things come together so things are looking up. Back on the right health plan, LW plan, and life plan. So with a fist full of antibioitcs and my side kick, I’m jumping back in. Life full steam ahead! And by full steam I mean nap time!

Ozone was good, but the doctor was not.

Ozone therapy, Chiropractor, & extended family..

My first ozone therapy, chiropractor appointment, and life on the go.

Monday we left VA for PA for DIV ozone treatment. I chose to come to PA because my family lives in the area and we can stay with them while doing the short commute to the clinic. The first day I was in PA was filled with lots of herxing from my herbals and I was too toxic to get my first round of ozone. I had my doctor appointment anyway and we agreed to start the next day. He also removed more foods to see if they were causing issues. Now with my diet being even more limited, I’m not happy.

The next day I got my first 20ccs of 03 ozone. It was essentially like getting blood work done but it took 10 minutes instead of 2. She got my vein, pushed the 03 in and told me to wait to leave till I felt normal. I felt tightness in my chest and when I spoke or breathed deeply (your not supposed to do this), I would cough. I sat for a bit and left with no real issues. The next day I did the Ozone Sauna. There are many extra fancy things that I didn’t do in the sauna, for my first day I just tried the basics. You are wrapped in the plastic box up to your neck and the inside of the sauna with ozone that varies from normal temp to 113 degrees for a half hour. It was weird to feel semi normal but then to feel beads of sweat rolling down your shoulders and legs. I did get dizzy at one point because I am very heat intolerant but it passed quickly.

Through both of these there was herxing, exhaustion, heavy legs, disorientation, shakes,… the usual. By Friday, I was having a hard time orienting. My horizon was never stable or acting right. I got to my chiropractic appointment and was extremely grumpy. Disorientation & neuro symptoms are by far my most hated Lyme symptom.

I was tempted to walk out of my chiro appt because he was a half hour behind but I’m glad I didn’t. There was one spot on my neck that had always caused me tension for years, even before I even had Lyme but I ignored it. With 3 big cracks, he told me the base of my skull and my collar bone were not in line. Because of this my head was sitting almost an inch too far forward. After the 3 cracks, it was like standing up straight for the first time in my life. I had no idea. He said to follow up next time I was back in the state but that I should be good to go. This is my kind of doctor.

This finished my medical fun for the week and then family came to visit. While I’m here, I’m with my mom, uncle, and two aunts. The last two are very strong polar personalities so I’ll be honest, this isnt a stress free zone. Fortunately, they all have lives and its just me and my uncle hanging out in the house for the remainder of the weekend.  We like to stick to the safe subjects: the house cats, deer migrations in the backyard, and what classic guns hes bought online recently. With my exhaustion, these are the levels of conversation I can handle.

I wish I could say Ozone was totally worth the trip, but I have no idea. Monday I will get another Ozone DIV before I head back to VA. At this point it all seems like the usual up and downs of Lyme. I hope to continue another round in a few weeks but I need to start examining if I can financially afford it. At home ozone treatments might have to be the back up option.

With all thats going on this week, I had hoped to put Lyme Warrior on autopilot, but things never work that way. A few major project issues have surfaced and I am looking forward to down-time next week to sort through the problems I cannot currently solve. Fingers crossed for smooth sailing back to VA and no more unexpected problems till I have the energy to face them 🙂 Stay strong my friends.

Ozone therapy, Chiropractor, & extended family..

My Lyme & Autoimmune response

As many of you know, I have been treating with Jemsek Specialty clinic for over a year now. I have made a lot of improvement but as they tell me I will be entering my last round of intense antibiotics and I am still not my normal functional self, I have found myself moving to the belief that antibiotics are not the full solution to Lyme Disease.

I want to make it very clear that I am still an advocate of long term pulsed antibiotics. They have taken my life from couch-bound daily to being able to be functional around the house and having more and more good days going out. That being said, I think there is a large component of Lyme that is the autoimmune systems reaction to Lyme that we don’t understand. Like some people are allergic to foods, it is not that the food is bad but that our systems over react to it. I think the antibiotics have done a great job of killing the invaders but that much of my issues come now from my body being unable to settle back into its normal ways.

I will be finishing my last rounds with Jemsek, I have added in herbals, and I will begin DIV Ozone in October. My intent is to continue to use herbals to kill any invaders that antibiotics did not get while using Ozone and other alternative methods to calm my autoimmune issues. My new doctor is optimistic that I will be able to calm my neurological flares that keep me from driving relatively soon.

While all this treatment has been more expensive than I can afford, I am optimistic that it will all be worth it soon and I can return to a functioning lifestyle where I can do more to bring Lyme awareness and return to my career that has been left for dead over the last two years. I have to admit I am thoroughly exhausted from running from place to place trying to cure this disease and frequently struggling with finances, I feel closer to the end than ever before.

My Lyme & Autoimmune response