At the very beginning of my downhill health slide, I was diagnosed with delayed allergic reactions to foods. Black Pepper, Oregano, Oats, and Rye. What a bummer right? For the past few years, I’ve just avoided these foods assuming the medical field had gotten one thing right. Of course, not so much.
I got a new round of herbs over the holiday. Christmas morning I sat with my family and had a wtf moment as a wave of dizziness washed over me. This is what my delayed allergies feel like. Its like the feeling you get going over a rollercoaster but in your head. You want to pass out and throw up simultaneously. Its brief but truly awful and you feel weird for a while after. So, I call and ask who spiced my herbs? Of course no one did. They don’t need seasoning.
Lyme had invaded my pituitary gland in my brain. The new herb that I had been using had effected this gland and gone off in flashing lights where the Lyme was still living. I had never had allergies. Foods like Black Pepper, Oregano, and Oats stimulate the pituitary causing this neurological reaction they had misdiagnosed as an allergy.
I, for one, am ecstatic. This means that after treating this section of the brain responsible for many of my cortisol and adrenal issues (the pituitary controls most of your hormones) I would be able to have all these delicious foods again seasoned with pepper and oregano! Not to mention, I am sure I will feel a hell of a lot better. I am already planning my 2 month binge into Italian food.
What concerns me is when diagnosed my doctor told me he diagnoses people with delayed allergies almost every day. That means for the 3 years its been since I’ve seen him, he has diagnosed about 1,000 people incorrectly. Its realizations like this that make me panic for all the people who have to go down this road because of doctors being blind to Lyme. I absolutely will be making a call to this doctor and hope that my knowledge is well received. On the positive side, food will be delicious again one day.
About one year ago before I was diagnosed with Lyme Disease I started going to therapy. The not knowing if I would ever not be sick was crippling so I sought help. A year later I’ve decided to stop therapy due to scheduling and other issues. In our last session today my therapist brought it up that if we had more time he would have liked to investigate if I was helpfully or unhelpfully distrustful of doctors.
I’m very proud of myself for not yelling at him. But I wanted to put it out there what I told him.
For 1 year and two months of the sickest time of my life, every doctor I saw gave me no help. No diagnosis, no definitive treatment, no hope. They either said you can see if this pill works, stress less, or some flat out told me to deal with it. I have the most common bacterial disease in the country and literally 40+ doctors were unconcerned and unable to help me. I would either constantly rotate through their office or if I spoke back about their lack of ability to treat they would fire me as a patient. Upon following up with all these doctors to tell them how they failed, not a single one has asked for more information. So when I say I distrust medical professionals its 100% based on experience in their lack of expertise and lack of ability to do their job.
Do I still see doctors? Of course.Do I follow their protocol? Defiantly. Do I ask questions, do my own research, and question treatment. You bet I do. In a medical world with so many issues, we have to fight for what is best for us.
One truly awful doctor at one of the most prestigious medical schools in the area said to me that I needed to learn to live with “whatever was wrong with me” and that there was nothing anyone could do to help. If I had listened to his advice I would probably have killed myself because I was unable to cope with how sick I was. Instead (after a large breakdown) I still pushed, called, and got into every doctor who would see me and eventually found the one who has helped me get my life back.
Being your own advocate is a Herculean task and chronic illness is not for the faint of heart. However it is never over until you give up.