As Lyme Disease Awareness month gets under way, I see thousands of posts a day trying to spread awareness. This has been hugely helpful because I can see what works and what does not. Hint: its not the loudest ones making an impact.
Everyone has their style but is being loud and in your face about information something that draws people? Usually no. To draw people to you, you have to build a human connection, give them something to relate to. While all Lyme Disease awareness is great, if we are tactful we can make a bigger impact.
What drew you into a community you are part of? Think about how you would want new, scary information presented to you. Most awareness for medical conditions is only achieved by ones close to those sick learning more and advocating. Screaming that this disease is deadly and omnipresent, while true, is scary and sends people running.
I think about who cares most about me and didn’t know me first. Our first conversations were about who I am, my hobbies (even if they are on hold), my passions, not about Lyme. I slowly let them in about the seriousness of the disease. With the time they took to get to know me, not just my illness, built a stronger connection and therefore more empathy. Empathy is far stronger than fear.
So to all the amazing advocates out there, I urge you to strengthen your message. Try to look from the outside in. We have created an amazing Lyme community. Now it is time to reach out to those who care about our condition and not to scare them but to bring them to our team to end the epidemic.
A frequent misconception I hear from people is that they assume because I advocate so strongly, I’m healthy and doing well.
While I admit I have made big progress in my Lyme treatment and I am so thankful to be improving, I am still home bound most of the time. I rely on family to do my grocery shopping or getting me to my doctors since my symptoms still prevent me from driving. I financially rely on my family and my Beautycounter business to pay my bills because Lyme Warrior profits all go to research and awareness. Because I lost my ability to take care of myself, have a job, lost my friends, all these normal Lyme issues are what make me fight back so hard to change Lyme.
When I am healthier, I intend to continue the fight and do even more but until then I am in the same boat as many other Lyme patients. So to the people criticizing my efforts, remember I’m just a patient like everyone else trying to get their health back and do the best I can until then. Its easier to complain, than to fight back at your lowest. Join us and take the hard road.
While I am stuck at home unable to work and contribute, it was driving me crazy that I had nothing to do. I created Lyme Warrior so that at whatever varying level of health people are, they can contribute to fighting back against the hardship of Lyme Disease. It is very hard for one person to change everything, but it is very easy for many people to change things. With all of us working together in a unified effort we can make huge changes.
Lyme Warrior has projects ranging from emailing people about events, writing up information about Lyme, creating art, projects and more. Almost all of which can be done from the comfort of your bed. When I started Lyme Warrior, it was just me working 10-14 hour days from my couch trying to get this started. Now we are 5 volunteers working what seems like constantly to get Lyme Warrior bringing in money for research to benefit us all.
If you want to help, please don’t hesitate to reach out to me or one of our members to see what you can do. We have so much to do and just not enough hours in the day. Every single person who contributes helps share the job and expand our reach to achieve more.
Lyme Warrior Advocates Fb Group
Lyme Warrior is not going to be a passing company, we are going to make big changes for our disease.
Between being on the road to see my doctor, visiting my friend in the process, Lyme Warrior and Beautycounter, its been a busy few weeks! I find myself in the vicinity of working 10-14hr days from my computer but I can’t stop because of all the fantastic feedback and motivation I am getting from Lymies!
I am so appreciative of every purchase, repost, volunteers for projects, etc. I really should be taking more breaks but it makes me so happy to be working with everyone to change the face of Lyme. We have started the ball rolling slowly but it is defiantly rolling.
I can’t wait for each of the new projects to share them with you all and then the world.
With all your voices, we are undoubtedly going to put an end to the silent epidemic of Lyme. Thank you so much to everyone who has supported this and made it possible!.
The first time I saw this article it annoyed me. After the millionth post, what the fuck. Yes, I understand that raising children must be very hard and draining. However, when she says should I really throw out $30 of sunscreen, one she is now aware is toxic to her child’s health. THE ANSWER IS YES. Your child’s health is worth $30. And again, I can commiserate with money being tight but , don’t just pick stuff out of the bargain bin at Walmart. Take 5 minutes to google safe options that you can make at home for less. You want time with your kids, teach them to do it.
When you chose to be a parent you take on the responsibility of all these choices, hard, time consuming, etc. But what above all makes me so frustrated is all this complaining and not a thing being done about it. We know our skin care products are toxic, we know vaccines are causing health issues, we know processed foods are making us sick. DO SOMETHING ABOUT IT.
Join a company fighting these things, use your article complaining to put out a petition, JUST DO SOMETHING! Instead of whining at the injustice of living in a toxic world do something to make it less toxic for your kids and their kids. The most toxic thing in this world is people not standing up against what is wrong.