I’ve been a bit absent in my posting recently. I have been feeling decent and in that been getting a lot of work done for my fantastic Beautycounter business and my non-profit I am forming. Both have been so wonderful for my mental health. It feels so good to be working towards something that will benefit not just me but others. I would love to gush to you about all the things I’m working on but you will just have to stay tuned.
Friday I begin what my doctor states to be a “really bad” round of treatment. It is focused on breaking biofilms and removing Lyme from the brain. I took a peek at the side effects of the meds and I don’t doubt its going to be a rough ride. Lightheadedness and dizziness were side effects of most of the meds and I already know minocycline makes me want to fall over lightheaded.
So that being said, I am locking down and preparing for what the meds bring but really optimistic that after the 3 or 4 months of this protocol I will have made a big step forward. I dare even hope be able to drive again.
If any Lymies have any ideas on ways to not be lightheaded or to cope I’m all ears! Thanks for reading.
One of my first big hints that I had Lyme Disease was delayed allergic reactions to food. Black Pepper, Oats and Rye to be exact. Also when you have Lyme Disease you need to follow a gluten free, low sugar diet and some also include diary free.
I became lactose intolerant midway through treatment so all these food restrictions make it very hard to go out to a restaurant. For 2 years almost I have just avoided restaurants in general. Yesterday was the first day I went to a real restaurant and ate. While this is common place for most people this was a huge day for me.
Not only did I feel good enough to go out and socialize but I found a food that I could eat with no negative side effects. To do a normal daily activity felt so freeing and delicious. Never take the little things for granted.
Two months ago I joined a direct marketing company Beautycounter with some reluctancy. I don’t like pushing sales or feeling like I’m forcing money out of people but I believed in their products and I thought I would put my own spin on sales.
I’ll save sharing my secrets and methods till later but somehow in my second month I’m getting orders. I haven’t felt like I was cornering my friends and relatives and I’ve been getting cold orders and it feels awesome. To get emails that they love the product and for people with health issues who arent having reactions, the work is fully worth it.
Another thing I have found from my brief time in sales is that there are a lot of bad sales people. If you are active in social media you will be contacted many times a day with offers of endless things. The defining difference in a good sales person is personalization. I hate blast messages, last minute offers, and all that. What works is having real people talk to me, about who I am, what I support, how my illness effects me, and so on.
Since joining Instagram I have probably had about 50 people offer It Works products to me. I said no to everyone except for the one that actually got to know me and found a product that could help me, one that I had disregarded earlier. She sent me a sample so I didnt even have to buy it to try. I am still waiting to get the product and try it but hands down this will be the person I buy from and promote. This is what makes a good sales person is understanding your client as an individual, not just a target audience.
Everyone has a way to get their sales, but I firmly believe in selling people things that benefit them and nothing more.
I’m pretty excited about the MakeupMonday this week. Their Dew Tint and Tint Foundations are some of my favorite and I am a sucker for nice brushes. I literally have a set I’ve never used because I love how perfect it is. Yes, I’m a bit crazy.
I also wanted to share a Lyme not fun fact. Lyme disease often makes us allergic, intolerant, reactive to foods and products. I spoke to a girl who was having issues finding a shampoo and everything was causing her to react. I sent her a sample and the message I got back was.
She had no reaction and loved the product. It makes me so happy to one, help a fellow lymie and two to spread a great product. Double win day. Hope you all are having a great Monday too!
Its been about 2 years since I’ve been to the movies. I don’t really like movies, but I did want to see Deadpool.
I was not feeling great but not terrible so I put my big girl pants on and got out the door. John drove while I shook and whined about my back aching. Honestly it was very odd being around people, doing”normal things”. I felt like an outsider observing things, like I wasn’t part of the normal world anymore. Obviously I look normal and the outing was as average as they get but it felt so strange to me.
When leaving the movie my head was splitting, I was shaking, and I felt rough but I made it. While I enjoyed the movie and am glad John and I could do something “normal”. It always begs the question to me, was it worth it? 3 hours of sitting at home feeling as good as possible or 3 hours of a movie feeling bad.
I think its worth it to be part of the world. Not daily, not always, but I think its important to not become an outsider to your own culture. The longer I’m not integrated into my society the more I feel abnormal which isn’t what I want to feel. I do not want my illness to make me a shut-in or a hermit. While it will continue to be a challenge to be “normal” I think it is worth the pain to venture a trip into the “normal world” occasionally.
One of my harder adjustments after becoming ill was realizing I had to be dependent on others for help. Pre-illness, on the run from job to school to gym and again all day, I rarely needed help and if I did it was minimal.
Fast forward 22 months and I need to be driven every where, occasional help with preparing food and any errands or outside things I need I either have to pay to be delivered or ask my parents to get it for me since I now live at home.
Don’t get me wrong, I love my parents a ton, but I am used to my space. This week I finally got a chance to get away and stay at my ex’s house. Now while this doesn’t sound optimal he is at work or the gym most of the day so I am soaking in hours of silence and it is wonderful.
Not all of us have the option but if you do, take a break. Sometimes being sick in a different place is refreshing and gives you a way to reset. I’m filling up my patience meter and getting tons of work done, uninterrupted. Take away message, keeping your needs satisfied is important. Do what makes you happy and thank those who make it possible. 🙂
With Facebook posting their friend’s day thing and heading back to my city soon I’ve been returning to the idea of friends. My Facebook friends montage was entirely from years ago. Not even anything in the last two years. This is because I don’t go anywhere or do anything with people from being sick. The great friends they showed me are all my co-workers who forgot I existed 2 weeks after I left my job.
It is a daily struggle for me to not be resentful of the people I called friends. People I thought I had real connections with don’t return my calls, people from my childhood who don’t even know I’m ill, or people I vacationed with I haven’t heard from in two years. The people I talk to now are my few really close friends and people online. I continually think, well, if people don’t care if I’m okay then I guess that’s the end of our friendship. But then they were all gone. Pretty much if I don’t reach out to people I won’t ever hear from them again or it will be months.
I have been accused of being overly passionate about my bonds and connections with others before but I dont want half-assed friendships. Not texting back is rude. Knowing people are sick and ignoring them in insensitive. Why do I feel crazy for thinking this? Why is it such an abnormal thing to reach out to people?
I don’t know why things have become this way but I’m ready for a change. If anyone knows where the ride or die friends are tell them to give me a call.